About Me

Hello!

Welcome to my new place of solace, vault of occasional usefulness and general whirling written account of the thoughts inside of my brain!

So this is me. My name is Joy, although most call me Milli.






I am a 26 (going on 93) year old mum of one amazing 2 year old. I'm lucky enough to have already met my soul mate in my Fiance, Jason - 10 years and going strong!

I've been suffering with Severe and Chronic Plaque Psoriasis for 26 years - that's all of my years. I was diagnosed with Psoriatic Arthritis at about 21 - Although I'd had all the markers and symptoms since around 16. I've tried mostly every type of treatment available - both medical and holistic, with a bunch of random treatments thrown in for good measure. This gives me a unique ability to share with you treatment reviews, advice, tips and tricks for living with Psoriasis.

I live in Tasmania - Mostly because I'm nuts apparently. I'm the Ned Stark of Hobart - the second the light outside is gone by 8pm - WINTER IS COMING! We are firmly in the grips of the freezing cold that can only be a Tasmanian Winter. Yeah, like.. It's pretty an all.. But I wouldn't know.. I'm busy hibernating to try and stay warm and avoid the damn plague bearing general public. I assume you all know my battles. It's a burden we all must bare.
Things to know about me -
     - I rarely soften words, I tend to tell it like it is. I feel that the blunt truth is something I always appreciate from people, so it's what strive to provide!

     - My hair colour is rarely the same twice, and hardly ever normal!

     - I swear, and that shows within my posts, often.

     - I have times where dealing with day to day life is enough. I won't always have time to post. Don't take it personally, Sometimes I just need time away.

     - I am always happy to help. If that means you would like to reach out via other means, I am happy for that to happen. This can be a bitch of a disease and we all need a little help and reassurance sometimes. It always helps to talk to someone who understands what you are going through and how you are feeling. HOWEVER, if for any reason I feel you are at risk of harm, I will always recommend you seek professional help or may contact authorities to assist.

I hope to post a few times a week - Sometimes more, sometimes less. Depends on how I'm feeling - Sometimes an energetic toddler is enough to deal with.. I assume you understand :)

Thanks For reading, and I hope to see you back soon!

Comments

  1. Mi experiencia 11 July 2019 at 05:45

    Hello Joy, this is interesting, tell me are you ok now? Do you still have Psoriasis?

    ReplyDelete

Post a Comment

Popular posts from this blog

Progress Report - Taltz Update

Hello guys! Welcome and welcome back! I've been gone a while and I'm here to tell you why! So as you may know, I was put on Taltz at the start of August. I've got a few progress report posts in the "Current Treatment" tab. I had been experiencing headaches and migraines since beginning treatment, and was feeling alot of fatigue. I had put it down to starting a new treatment and having a loading dose - two needles on the same day. But the headaches continued. I was also dealing with extreme exhaustion, continued joint pain, and a few other things. And then I got sick. I went to the doctor at the end of August with what I thought was the flu. I mentioned my new medication, and the headaches etc. He took a look at me, and deduced I had a severe sinus infection, (the real cause of the headaches), an infection in my throat and a body so run down I could barely get out of bed. I was told not to take any shots while I had an active infection, and so I started...
Read more

Humira - Treatment Review

Image
Ahhhh Humira. 💗💚💚 I know. You guys will probably think that I'm ridiculous saying Methotrexate was my most memorable after reading all this, but for reasons unbeknownst to me, it still sticks out more to me than Humira does, for all the wrong reasons! *Facts - Humira ( Adalimumab ) is another anti-rheumatic. It's used for treating a range of Auto-Immune Diseases such as rheumatoid Arthritis, Ankylosing Spondylitis, Psoriasis and Psoriatic Arthritis, Crohn's Disease and Ulcerative Colitis, to name a few. It works because it is a TNF inhibitor , which is a part of the body's inflammatory response. (This is great if you, like me, enjoy tattoos - quick healing times :p) It is available as a Pre Filled Pen or as traditional pre filled injection. these can be done yourself with training, or by a loved one - or by your treating physician. These injections are painful. I can only speak for the pen (my fiance couldn't bring himself to give me the injection) but...
Read more

Current Treatment - One Month Taltz Update

Image
Hey Guys! So, today marks 1 month on Taltz! This adventure has so far been a bumpy ride. It has definitely helped my skin, but differently to how Humira or anything really, has helped in the past. I'm still having trouble with my joints, although I'm definitely in less pain, I'm still in some pain, and still feel the restrictions in my movements as I did before I started. To my knowledge, this is currently in trials to become a PsA treatment, but unless mine isn't PsA, it's not really helped as much on that front as I'd hoped it would. While the side effects have been more prominent, they have been mostly common. The headaches have been fairly extreme, almost daily. While Neurofen or Panadol takes the edge off, its back as soon as they wear off.  The exhaustion. I have been so tired you guys. For about 2 days after the injection, I feel more energised, and actually struggle to get to sleep, and then it's kind of like a sugar crash only it lasts for t...
Read more